I remember the exact moment a nurse referred to me as “the anxious one” — not to me, but to my best friend, just outside my hospital room door, as if I weren’t a person on the other side of that wall but a file that needed flagging. I hadn’t been given an anxiety diagnosis. I had asked a lot of questions. Apparently, that was enough.
That moment stuck with me not because it was catastrophic, but because it was so ordinary. Labels get handed out like name tags at a conference — quickly, casually, and almost always without asking the person first.
“What Do You Want to Be Called?”
It sounds like such a simple question. And yet, for millions of people, it is rarely asked.
Take the ongoing conversation around racial identity. For years, the term “African-American” was widely adopted as a respectful, politically correct designation — a well-intentioned shift away from language that had been used to demean. But here’s what often gets lost in that narrative: not everyone asked to be called that.
Many Black Americans — and increasingly, people 50 and younger — prefer simply “Black.” The reasons are personal, historical, and deeply layered. For some, “African-American” feels geographically reductive, implying a specific continental tie that doesn’t reflect the complexity of the global community. For others, “Black” carries a sense of cultural solidarity and pride that was hard-won through the civil rights movement. And for many, it is simply the word they use for themselves.
“I’m not from Africa,” a friend told me. “Calling me African-American is someone else’s idea of being polite. Just call me what I call myself.”
The irony is sharp: a label meant to show respect ends up overriding the very preference it was trying to honor. Good intentions, it turns out, are no substitute for actually listening.
The Disability Label That Wasn’t Asked For
The language of disability is similarly fraught — and similarly prone to being applied by people who mean well but haven’t stopped to ask.
Consider my own speech impediment. I navigate the world with it every day and have built an entire relationship with it over the course of my life — frustration at times, though acceptance and humor have prevailed. And then someone, often a well-meaning administrator, a form, or a bureaucratic process, wants to file me under “disabled.”
For some, that label unlocks resources — accommodations, legal protections, community. They may embrace it. But for others, being designated “disabled” for a speech impediment they’ve never thought of as limiting feels like being handed a category they never applied for.
“I have a speech impediment — no one speaks for me. I’m not disabled. I give presentations. I run a team. Someone decided what I am without talking to me about it.”
This is not a fringe concern. Disability advocates have long argued that the question of labeling — who gets called what, and by whom — is inseparable from questions of power and self-determination. The Americans with Disabilities Act defines disability broadly, and in many contexts that breadth is exactly the point. But the label itself, imposed without conversation, can feel like being sorted into a box that doesn’t fit.
When Labels Become Law
Part of what makes unsolicited labeling so sticky is that it often gets institutionalized. A label written into a school record, a medical chart, or an HR file doesn’t stay in that document — it travels. It shapes how the next teacher, doctor, or manager reads you before you’ve said a word.
Researchers have a name for this: labeling theory. Studies in educational psychology have consistently shown that once a student is labeled — whether as gifted, remedial, or behaviorally challenging — that classification begins to influence their outcomes independent of their actual abilities. Teachers adjust their expectations. Students adjust their self-perception. The label, applied once, starts to do its own work.
The same dynamic plays out in healthcare. Physicians who see “non-compliant” or “difficult” in a patient’s chart — labels often applied by a previous provider who was frustrated, not clinically objective — bring that framing into the exam room. The patient has to fight against a ghost before they can even describe their symptoms.
The Weight of Someone Else’s Language
There is a psychological dimension to this that goes beyond inconvenience. Identity is not just how others see us — it’s the story we construct about ourselves, usually over many years and with significant effort. When someone else inserts a label into that story, it can quietly rewrite the narrative in ways that are hard to shake.
A woman told she is “too emotional” in a performance review may start editing herself in every meeting that follows. A man labeled “aggressive” by HR — for the same behavior his manager calls “assertive” — carries that word into every interaction with management. An employee stamped “difficult” in one company’s system may find that reputation traveling with them to the next. These are adult experiences, happening in adult spaces, with real professional and personal consequences.
And that’s perhaps the most troubling part: most labeling isn’t malicious. It’s efficient. Categories help systems run. They help people make quick sense of strangers. The cruelty, when there is cruelty, is usually not the point. It’s the byproduct.
Some labels are written for a moment but worn for a lifetime.
Pride Month and the Fight to Self-Name
Every June, millions of people take to the streets, not just to celebrate who they are, but to insist on the right to say so themselves. Pride month is, at its core, an act of self-naming — and the LGBTQAI+ community has one of the longest, most hard-fought histories with exactly this issue.
For much of the twentieth century, the dominant labels came from institutions: medical, legal, religious. “Homosexual” was a clinical diagnosis. “Deviant” was a legal category. “Sodomite” was a moral verdict. None of these were chosen by the people they described. All of them carried enormous consequences — job loss, imprisonment, forced treatment, social exile.
The community’s response, over decades, was to reclaim the language. “Gay” replaced the cold clinical distance of “homosexual.” “Queer” — once a slur wielded as a weapon — was taken back and transformed into a word of solidarity and pride, particularly by Generation Z who use it as an umbrella term that resists the pressure to fit neatly into any single box. That reclamation wasn’t accidental. It was deliberate, political, and hard-won.
The debate over language continues today, precisely because the stakes remain high. Many transgender people object to being called “transgendered” — the added “d” implies a condition that happened to them, rather than an identity they hold. Being “outed” — having your identity disclosed publicly before you’ve chosen to share it yourself — remains one of the most visceral violations of the right to self-name, with consequences that range from fractured relationships to genuine physical danger.
“I spent years letting other people decide what words applied to me,” a gay man in his late fifties told me. “Coming out wasn’t just about being honest with others. It was about finally getting to use my own words for myself.”
Pride month, then, is not merely a celebration. It is an annual reminder that the right to name yourself — to choose your own words, on your own terms, in your own time — is not a small thing. For many people, it has been the most important freedom of their lives.
Reclaiming the Name
What does it look like when people push back?
Sometimes it looks like community. The neurodiversity movement — led largely by autistic people, not by clinicians — has fought hard for the right to self-identify, to choose “autistic person” over “person with autism,” or vice versa, based on individual preference rather than institutional style guides. The argument isn’t about which phrase is correct. It’s about who gets to decide.
As one person put it simply: your identity isn’t a synonym for someone else’s comfort.
A Different Way Forward
None of this means we should abandon language or pretend that categories don’t serve real purposes. Labels can provide access to services, build solidarity, make sense of shared experience. The word “disabled” has opened legal doors for millions of people. The word “Black” has built a cultural and political movement. “Queer” has become a home for people who found no other word that fit.
The difference lies in direction and consent. A label that comes from within a community, chosen and used by its members, carries a different weight than one applied from the outside. A diagnosis offered as a framework — “here’s one way to understand what you’re experiencing, though you get to decide if it fits” — lands differently than one stamped into a record.
The question worth asking is not simply what label is most accurate or most polite. It’s a more basic one: Did anyone ask?
It costs very little to ask someone what they’d like to be called. It costs considerably more to spend years carrying a name that was never yours.
If you have a story about being labeled without your consent, or about reclaiming your own identity, reach out.
Kiss & Tell Magazine
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